Tuesday, January 17, 2012

Sadly, none.

I have been hoping and pressing my doctor for SOME kind of update. Sadly, there isn't one. My first set of cultures only show a very small amount of psuedomonas. I was able to give a better culture on Sunday, but those results are still pending. I am on Tobramycin & ceftazidime, so I have good coverage for the general stuff.

She did place me back on ursidol (actigal) which is a medication for my liver. Apparently my liver count was elevated and she decided I should go back on it. Thankfully at the moment that is the only new medication I've been placed on.

She saw my sinus CT and agreed with everyone else I've ever seen, "you have the worst sinuses I've ever seen". However she doesn't wanna to sinus surgery while I am admitted this visit. Thats bittersweet to me. Part of me thinks that we need to get my dropping lung function & racing heart under control. However another part of me thinks that maybe having my sinuses done would help eliminate more infection my body is fighting. :/ VERY unsure about this.

I have HUGE issues with how un-proactive my doctor is. I am hoping to talk to a new CF dr this week & get a general idea of how he would do things. WHY is it so hard to find an aggressive dr that likes an aggressive patient??

I am sorry for missing 2 days of updating, I've been battling sinus headache gone migraine - I'm slowly winning the battle but not thrilled to sit on a computer. I hate that I don't have more to update about. I'm going to log off now & watch some TeenMom, Extreme Couponing, & whatever other silly reality TV I can melt my brain into.

Thanks for reading & all the prayers!
Jessica

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